Some more memories and stories about Max33 commentsPrayer Angels!
In October 2012, about a month after Max was diagnosed with FHC, he received a card with a Nebraska return address. We didn’t know anyone in Nebraska. When he opened the card he found a little stitched angel inside. The card wasn’t signed by any one individual, but by a “secret angel stitcher.” Day after day these cards continued to arrive in the mail from all over the United States. Each card contained a stitched angel. Some cards contained beautiful prayers; others contained words of encouragement. All were sweet, kind and thoughtful. So that Max would be able to appreciate the angels, I bought a map of the United States. When an angel arrived in the mail, we pinned it to the state from which it was mailed. We later discovered that there is an organization called the Secret Angel Stitchers. They have a website at www.secretangelstitchers.com. It was so heartwarming to know that so many people from so many different parts of the country were saying prayers, creating little angels, and thinking about my Maxie.
Max and Terase attend the 8th grade school dance.
Max and his 9th grade rugby team A parent's poem.
Max spent many days and nights at St. Jude. Sometimes he was inpatient overnight, sometimes it was more than one night. Once he was wheelchair-bound he liked being pushed around the hospital. We would always start by visiting his nurses in AT (Assessment Triage). He wanted to see Ms. Virginia and Ms. LaTonya. Then we would go to the gift shop. After that, we would go to Starbucks and the cafeteria. One night after making our rounds Max took me to an auditorium that he had discovered because he wanted to play the piano. We went there many times.
At some point you may be faced with extraordinary costs to store pictures on your phone or camera. Our experience tells us to pay the toll, buy the extra memory. You can never have enough good memories, and you never know when that is all you have left.