Max's Foundation News 2018
More short videos to keep ringing the bell.
You know those wonderful people who stand out in front of stores during the holidays?
They never stop ringing the bell. Always ringing, never stopping, the heck with the rain and cold.
There aren't as many of us as those brave and wonderful souls, but we're going to keep ringing the bell because we think our cause is important!
We've produced some little video reminders to stand in front of the 'internet store' all year long to keep ringing that bell.
These will appear almost daily on Twitter. If you would be so kind as to like, or follow, or retweet our little bell ringers there, we will be very, very grateful. Thanks! Oh... here's Max's twitter page -
Click here to see Max's Twitter page
Remember, please like, follow, or retweet these videos when you see them. Thank you! -- a simple act, but who knows who it might reach and how they might help in the fight against Fibrolamellar
An updated video to say 'Thanks!'
We updated one of our videos to let viewers know we had met our 2017 goal. Please take a look on youtube.com at Max's Foundation --
Click here to see Max's update video on Youtube
As always, if you like or share Max's Youtube videos it can help build awareness about Fibrolamellar -- a simple act, but who knows who it might reach and how they might help in the fight against Fibrolamellar
Our check flew to New York
"The check's in the mail!" (actually it flew via our hometown shipping company, FedEx) and was delivered and signed for on January 5, 2018. Our heartfelt thanks to all who donated. The more fibro cancer cells we can grow in life-like liver conditions, the better our chances of killing this disease
We received a BIG thank you from everyone working at the lab, and are happy to pass it along to you!
Our GoFundMe campaign and other sources met our goal!
We raised $8411.00 to purchase a cell incubator for the Simon Fibrolamellar lab at Rockefeller University. The idea is to raise fibrolamellar cell tissue cultures in an environment that very closely approximates the oxygen levels, carbon dioxide levels, temperatures and other variables found inside a fibro patient. Only then can we be sure that the tests we try to attenuate or eradicate the malignant fibro cells may actually work in 'real life'. That's our goal..to get rid of those bad little guys, so our sweet kids can live!
We are deeply grateful to everyone who helped
Max's Foundation News 2017
Max's Foundation GoFundMe campaign for a fibro cancer cell incubator
Max's Foundation raises funds for a fibro cancer cell incubator
Max's Foundation funds much needed cancer research equipment
On July 5, 2017 Max’s Foundation presented a check to Dr. Sanford M. Simon, head of the Laboratory of Cellular Biophysics at Rockefeller University in New York City. Dr. Simon spent almost two hours of his valuable time bringing us up-to-date on his lab’s Fibrolamellar research. He and Dr. Gadi Lalazar, one of his colleagues and a fellow Fibrolamellar researcher, took us on a tour of the lab where all of the research is conducted. Although much work has been done over the last several years, a lot more remains to be done before a cure for Fibrolamellar can be found.
With the donation made by Max’s Foundation, Dr. Simon should be able to purchase a much-needed SterilGARDII biosafety cabinet. Max’s Foundation, with your generous support, hopes to be able to provide Dr. Simon with more funding for lab equipment so that he and his team can continue their groundbreaking work in the fight against Fibrolamellar.
Yamaha makes a generous donation to Max's Foundation
We were touched when Yamaha contacted us to say they were making a very generous donation to the Max Burdette Fibrolamellar Cancer Foundation. Perhaps they noticed us because Max, as a Yamaha V-Star owner and an accomplished pianist and musician, was a devotee of both of Yamaha's original product lines, or perhaps it was something else. In any event we are ever so grateful to the people of Yamaha. Or, ヤマハの皆さん、ありがとう / Yamaha no minasan, arigatō gozaimashita - June 26, 2017 / Heisei 29
Sugar & Cloth's Give Back Party with Kendra Scott
Sugar & Cloth hosted an event in Houston on May 23rd at Kendra Scott City Center, as well as taking pre-orders online so that 20% of ALL purchases can be donated to my cousin Max's memorial charity after his passing from liver cancer at age 17.
I also got to work with them to design two "Max" pieces, a ring and a bracelet, both of which incorporate green since that's the color of the liver cancer awareness ribbon.
Though 20% of any purchase at the event or from the pre-order list online will be donated, every "Max" item that's purchased there will be an additional Kendra Scott piece donated to give to the pediatric patients fighting the fight at St. Jude.
There will be sips by Deep Eddy vodka, sweets by Okie Doughkie, savory bites, a lip color bar by Sephora, and plenty of goodies to shop for at Kendra Scott.
Rhodes Soccer Match for Max
MEMPHIS - The 3rd Annual Max Burdette Memorial Match will take place Saturday, April 8th at 2:00pm when the Rhodes Men's Soccer team hosts the Rhodes Alumni in a spring contest.
The team will also hold a picnic lunch for team members, parents and alumni immediately after the match.
Rhodes Soccer started the "Match for Max" in the spring of 2015 after 17-year-old Max Burdette, younger brother of Rhodes team member Paul Burdette, was taken from us after a battle with Fibrolamellar Hepatocellular Carcinoma, a rare form of liver cancer seen primarily in teens and young adults.
The match allows us to remember Max and to support the fight against Fibrolamellar cancer. With only 200 diagnoses worldwide each year, Fibrolamellar has limited research and funding. The Max Burdette Fibrolamellar Cancer Research Foundation has been set up to help these young fibrofighters by raising funds and awareness of the disease. The Max Burdette Foundation also aims to establish a Fibrolamellar research clinic at St. Jude Children's Research Hospital.
"Match for Max" t-shirts will be on sale at lunchtime in the Rat during the week preceding the event and at the game. All proceeds from the t-shirts will benefit Max's foundation.